Wednesday, 9 May 2012
ME/CFS awareness week
So this week is ME/CFS awareness week. Some of you will know that last year I was diagnosed with CFS. I am very blessed in that my symptoms have not been too severe and right now I am doing really well with greatly increased energy levels. But the journey has been hard. I gave up my job (partly as a result of the illness), I have fought to remain positive, fought to get help from the GP and had to explain hundreds of times why or even how I am ill. Comments like 'you look so well' and 'you seem fine' are not only unhelpful but also hurtful. I thank God for my wonderful husband and close friends who have been very supportive through it all.
As I said, I am blessed in that I am improving, but so many aren't. Sadly there is still a real lack of understanding even within areas of the medical profession.
As its ME awareness week, here's a few links to posts I have written about my struggle. I hope they might prove useful to some, help create some understanding and give some positive hope...
My Yoke is easy...
Having to undergo an HIV test
Abiding or Fruiting
By the way I chose this picture because it reminded me of times when I have just had to sit down and rest, no matter where I was!